AIDS
sunday kind of love…… sinead oconnor
the late 1980’s and early 1990’s were a hella time for me. i left chicago in 1987 landing in orange county looking for respite but realizing i had landed in quicksand. my mother was immersed in a toxic relationship and it felt as i had overdosed on jimson weed. in spite of my hopes for that move, my nature pulled me further down into the drink and i managed a last ditch “beam me up scotty” which transported me to denver. after all every day could have been the last day of my acquaintance with everthing. i jetpacked to denver with the single intention of dying. but damnit! i got so much more than that.
the pace of life was so much slower here that it provided the “breathing into a paper bag” solution to my life which was in hyperventilation mode. i relocated to denver in 1988 with every intention of dying from aids. it turns out that expecting to die at the age of 29 is not as emotionally tumultuous as not dying and not having a plan.
with the passage of 25 years, i have had the grace to come up for air a couple of times and catch my breath on firma terra. letting go, acceptance, forgiveness, recovery, inspiration, education, sharing, and teaching have become integrated in my daily routine. i work at integrating gratitude for this on the real.
during those first five years i became acquainted with another bright soul on a bold trajectory in life by the name of sinead oconnor. that introduction was like meeting an aurora borealis for the first time. it was a spiritual experience. she will always be a spirit guide to me.
This is the last day of our acquaintance
I will meet you later in somebody’s office
I’ll talk but you won’t listen to me
I know what your answer will be
I know you don’t love me anymore
You used to hold my hand when the plane took off
Two years ago there just seemed so much more
And I don’t know what happened to our love
Today’s the day
Our friendship has been stale
And we will meet later to finalize the details
Two years ago the seed was planted
And since then you have taken me for granted
But this is the last day of our acquaintance
I will meet you later in somebody’s office
I’ll talk but you won’t listen to me
I know your answer already
But this is the last day of our acquaintance
I will meet you later in somebody’s office
I’ll talk but you won’t listen to me
I know your answer already
I know your answer already
I know your answer already
unwind, unbind, rewind, remind
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last friday i flew to chicago and promptly drove to union pier michigan with a couple of friends to spend time in a cottage here that they have adopted as their home away. i spent the 1st 36 hours unwinding, rewinding, unbinding, and unbending all the knots and twists and broken places that i have barely noticed have taken place since this part of my journey began nearly 10 years ago.
it seems so simple now with hindsight to see that most of what i have experienced may well have been about patching holes i had in my life rather than creating new space and adventures. it seems funny and almost bittersweet to think that i have been refinishing and re-upholstering these last 10 years to try to bring my being to reflect the empirical value of my experiences and my life to be emblematic of a metaphor with the value of all the experiences, tragedies, and triumphs that any life may hold.
these next years just may be about seeing what this old but polished up vessel may still have left in her with regard to sea-worthiness. i can’t guarantee she will sail around the world, but i am confident there will be new ports of call. this is cause for hope.
i plan on connecting with a former neighbor who has relocated to a town about 10 minutes from here. it seems strange that life can be so connected that my past can intersect with my present in such a randomly concise way. but that is life as i know it.
i typed out a post which seemed perfect earlier here. then with one random stroke trying to properly place my little pic of the beach stairs, i erased those 8 paragraphs. i don’t have it in me to recreate them. i know better than to be angry about it. i can only move forward in the here and now. letting go of what could have been and what i intended. what i am left with is what actually from 1 perspective. no doubt it is as good as it gets. loving this rewind.
world aids day 2013

world aids day is preceded by thanksgiving by just a few days. i am publishing a post from my former blog “kickintina” which describes the footprint that connects both of these very significant days in my life. the emotions and the intentions of remembrance and gratitude, loss and illness have shaped my psyche, my heart, and my perception. i wrote on facebook that my friendship with paul was very influential in the structure of my adult personality. this cannot be truer- caring for my friend matured me. feeling helpless around making him well right-sized me, and feeling blessed by knowing him has helped me feel protected – almost cocooned from danger (if only that were real 🙂
seasons of love – and fear and rage- and change
i am starting this post the morning after i saw the film “how to survive a plague”. it brought back so many remembrances of just how terrifying the 80’s became for us. the uncertainty was palpable and in larger cities the anger was like a cloak that kept the gay community warm. i am humbly amazed at how synchronicity encircles my life.
i called a friend from sin(strength in numbers) and asked him to go with me. we ended up with 10 people going to see it- many of whom i hadn’t seen really for a year or more.there is a scene in the film where mark carrington on doing a film diary and is making a big deal about lighting a cigarette and looking cool. the filmmaker at the time tells him to forget the cigarette after he blows his line and he seems non-plussed because his cool stogie lighting bit won’t be included. the guys i was with laughed out loud in unison at the vanity of it all. it was even funnier because we all laughed and no one else in the theater did- actually we laughed at several bits in the film without accompaniment.
the shots of aids patients of that time are still haunting and rang in that personal nightmare without fanfare or fuss. actually i found the documentary experience utilitarian and cathartic. it gave me the opportunity to reframe some of my terror and uncertainty into something less fearful and maybe even hopeful. to really experience the effects of high-pitched fear and anger that were focused and targeted changed my landscape. it is sad that it took 20 years for me to catch up with peter staley, larry kramer, mark carrington, and the rest of the bunch. but i am very grateful i have had the opportunity to understand.
before this, i knew well that the actions of actup coalesced in a change of the systems we live with. the medical system, the research protocol, and the fda approval process. what i didn’t know what how well planned and well executed the strategies for change were by this rogue band of frightened and angry men and women.
and just like these lgbt heroes from the film. maybe the change can be for the good. all our lives have been touched and tweaked by the demands of those brave and angry individuals. patient-centered care, fast tracked new drugs, open nih board meetings, peer representatives are just a few of the improvements we’ve seen in our healthcare world. absolutely nowhere in my mind is there doubt that the actions taken haven’t saved lives. i know they saved mine. just how many they have touched may never really be known.
i continue to be completely mad for peter staley. it is an unrequited crush that i will carry to my end of days. he did all that was documented in this film, plus he shape shifted the consciousness of nyc gay culture around crystal meth in the early 21 century. he grappled with the drug himself, which was no doubt a side effect of living with the terror of looming death for so long. it was mentioned that there were/are issues for many of the long-term survivors. this is part of my experience, too, and is a blessing (albeit very mixed). to survive is a gift even if it has a costly price tag.
currently i have found myself very angry in my life. my sponsor/friend has passed and i spent many hours volunteering for a friends organization and have walked away feeling empty and burnt. i have removed myself from the fray which has turned down the heat abundantly, but i still have work to do in this arena. this film has lovingly reminded me that my anger can be of good use to me if i allow it to do so. i share in a meeting today that anger is really a signal that something needs work and i might look at anger as an opportunity to change. change takes time and almost everything changes with time. or so i pray.
Denver Sneak Preview- How To Survive A Plague
GIVEAWAY: Enter to win an admit 2 pass to the advance screening of HOW TO SURVIVE A PLAGUE!
IFC Films presents HOW TO SURVIVE A PLAGUE, the story of two coalitions—ACT UP and TAG (Treatment Action Group)—whose activism and innovation turned AIDS from a death sentence into a manageable condition. HOW TO SURVIVE A PLAGUE opens at the Denver Film Center Colfax on October 12!
Be one of the first to see the film on Wednesday, October 3 at 7:00PM in Denver! Enter to win by texting the word CHANGE and your ZIP CODE to 43549. (Entry deadline: 10/1 at midnight; Example Text: CHANGE 80246). Winners will be notified on Tuesday, October 2. There is no charge to text 43KIX. Message and data rates from your wireless carrier may apply. Remember, movie companies overbook previews, so arrive early because seating is not guaranteed.
true
august 26 2012 i will have my 54th birthday. it seems very surreal to even be walking in this truth. i am living well today and manage to find contentment most of time. i am happy and at peace. i went to the wedding of a friend (alone) and was reminded that deep in the recesses, there are some things i believe will never be part of my journey. for some reason i have found myself a little weepy this week.
in 1984 i was at the precipice of something remarkable in my life. i lived in chicago and held court at an after hours dance club in chicago. the party had been going for a decade, but some unexpected turns had begun. boys were disappearing like cattle in the darkness being abducted by aliens. in my world, it started with john bennet. i remember him talking with my friend blue in the loading dock recounting his fears of this virus thing. john was gone within a few months. and soon it was almost like he was never there. then there was hot rod- a dj friend of my friend mark stephens. hot rod left earth early on. i will never forget the night that mark spread his ashes on the dance floor at medusa’s per hot rod’s request. it was at once pagan, macabre, as well as celebratory..
a year or so later my best friend, paul pfohl, who was living in nyc and going to columbia was unexpectedly returning home to chicago. when he arrived back in town he had lost so much weight it was shocking. for so long we had spent so much time trying new restaurants and basking in conviviality, but upon his return and a gnarly case of thrush, food made him cry in discomfort as his tongue was unable to take the stimulation.
he continued to deteriorate over the next 13 months or so. he died on thanksgiving in 1985. but one month before he did, after nearly fainting in an aerobics class, i was diagnosed with that new virus and dr. bernie blau put a check mark in a column next to my name just in case quarantine might somehow become reality. i went numb that year. not until these last few years did i realize that some old trauma was reignited and new trauma was unleashed. but paul’s death that next month really sealed the deal.
i had been dating a young man named todd thennes from mchenry through about 6 months of this 1985 drama. he was sweet and definitely a welcome distraction. my drug use had already begun to morph from fun to frightening. todd was sweet and a rascal- which was kinda perfect for me. but of course with the diagnosis and the terror that came with it, i cut that relationship out just like a benign mole at the dermatologist. it sealed the deal as he informed that he had tested positive as well. he had befriended my entire social circle by that time though and he became part of the family of choice that was ours at medusa’s.
1985 signaled the onslaught of the tsunami that was the holocaust of our time. hot rod, mark stephens, todd thennes(who did a lot of the holiday decor at the club and for david), neil adams (nealina), bruce bliss and rick(who did much of the styling for the club the first couple of years), paul pfohl, sugar(medusa doorman), michael hamburger, jc, chicky are only a handful of the medusa boys who went to carousel. there’s a scene in the beginning of “hereafter” where a tsunami hits a beach town in thailand and washed over people and takes them with it. some are gone and some miraculously are not touched. this is precisely how it felt. once we were all there, but in what seemed an instant they were gone. and there i stood in a holding pattern.
it took awhile for the fear to recede – about 12 years actually. research, science, and advocacy changed the course of that story. after i started meds, i found myself really angry. angry because i didn’t have a plan, i had spent 1/3 of my life waiting for that tsunami to take me. and it fucking didn’t. out of that anger came a decision to move to san francisco. albeit an incredible city without compare, it took me on a darker path than i had traveled. and it left me like wicked witch of the east, crumpled up silently by the weight of a dark empty house.
in my recovery- which started in september 2004, i have made a conscious decision to not be like some men i know in my long-term position. i don’t want to be bitter, burnt out, sarcastic and cranky queen. it wouldn’t seem respectful to all those boys that got swept away. what would it say if i was a complete asshole when i had been granted an opportunity that they were denied? no better to embrace joy and work for happiness and to give care and love to others. besides, with all my experience in the darkness i can understand fear, denial, and drug abuse in a real and connected way. so that is what i do.
i was 27 years old in 1985. that was exactly 1/2 my life ago. i have traveled the world, laughed out loud, cried in silence, made messes and cleaned them up, engaged in 2 careers, gone broke, started over more than once, and still i am here.
i have been weepy this week, mostly thinking about those boys i loved that went missing 1/2 my life ago. i don’t ever want to forget them. it is by grace that i am still here. that is the only explanation that makes sense. and believe me boys- i haven’t at all forgotten about you. this much i know is true.